Category: Life

Nothing and Everything

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My husband is dead. It’s been almost 6 months. And he’s still dead. I walked into our, well, my, technically, bedroom tonight and I could smell him. And I sobbed. He didn’t even really have a particular smell. He didn’t wear cologne even though I kept buying it for him. He used whatever soap I purchased, so I guess we smelled pretty similar. His shampoo wasn’t super aromatic. But I swear I could smell him. So maybe he did have a scent.

I miss him. And yet, it’s almost as if he were never here. I often wonder how in the world did it all happen. Why did we meet? How did we fall in love? How did we come to marry and have children? And how on Earth is he gone? At 37 years old. I’m 13 days older than Ash and he always joked I would die first, naturally, because I’m so much older. But that didn’t happen.

He started getting sick in 2014. I also happened to get pregnant at the very end of 2013 so, at first, I felt like he was stealing my thunder a little bit, what with all the throwing up and not getting out of bed. That’s what I was supposed to be doing. He had countless doctor appointments and multiple hospital stays before he finally ended up with a diagnosis. Primary Sclerosing Cholangitis. It’s an auto-immune disease that affects the liver and bile ducts. I’m sure you could have guessed that if you have been reading my writings for a while. There is no cure. He may need a liver transplant 10-15 years down the road. Ash’s doctor was world famous. One of the best in his field. We were scared back then but he assured us, most people that have PCS die with it and not from it. Most people.

Ash and I changed our lives. Our marriage had been more than a little shaky for a while. At times, I did not deserve him. At times, he did not deserve me. But once he was diagnosed, back in 2014, our perspectives changed quite a bit. We learned to accept each other. We worked at it every day. And it worked. We changed. Ash had to quit drinking, you know, because of the whole liver disease thing. He started a clinical trial, we had to travel a couple hours north once a month to his doctor to check in and they were some of the most fun days in our relationship. We learned to communicate with each other again. We fell in love all over again. I guess, in a way. Life changed, for the better, if you can believe it.

In April, 2018, we were back at Ash’s liver doctor, just for a routine check up. And the words that came out of that doctor’s mouth was some of the best news we’d ever gotten in our lives. He said “I don’t know what you’re doing, but keep it up. Your numbers are incredible. We don’t see this with this particular disease much.” In September, 2018, he was diagnosed with Stage IV Terminal Cholangiocarcinoma. Bile Duct Cancer. Terminal. That’s how fast it happened. He went from what we liked to joke as a “medical marvel like Ross Gellar” to a dying man. How does that happen? Why does that happen?

I just miss him. I miss kicking his ass at Mario Cart. I miss all our date nights. I miss holding his hand. I miss just driving around doing nothing with him. I miss the way he could make me laugh. I miss his amazing smile. I miss his positive attitude. I miss how he always knew when I was about to start my monthly business based on my attitude. I miss hearing his voice. Jack has Ash’s old cell phone and the voicemail on it is still Ash’s voice. I call it, at least a few times a week, just to hear that “Hey, it’s Ash’s voicemail. Leave a message.” Simple. To the point. Just like Ash wasn’t. Ha! (It’s funny because it’s true.) Either way, I miss him. Hell, I miss the shit that I hated and thought I’d never miss. But I do. Grief is annoying like that. It reminds you that even the bad shit wasn’t really that bad. In my case anyway.

The kids are so incredible. They are so resilient. So in the moment most of the time. Sure, they have their breakdowns. But they are less frequent. I’m so envious of their strength. They are growing and learning and they are just amazing.

I don’t know the point to any of this, other than I went in my room, could smell my husband, sobbed and felt the need to write. So I did. And it’s helped in the way that only it can. My own personal therapy. Remembering him is a gift, one that I hope to only love one day.

Perks of Being a Widow

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I don’t know much about the afterlife. I guess none of us do. What I do know is that these lightsabers (you know the ones from Disney – not going there (literally and figuratively) again) have a mind of their own. They turn on at will. Jack’s will stay on for hours at a time. Glowing in all it’s purpleyness and making its cool lightsaber sounds. Like right now. It’s almost 10 pm. The boys are long asleep. And the lightsaber is just a glowing and whirring away. I like to tell myself that it’s Ash. That he’s showing me he’s here, that he’s with me all the time. Other random things will happen, also. The X-box turns on nearly every time I sit down to write. One night, lying in bed, unable to sleep, my hand (just my left hand, that was resting where Ash used to lay) turned ice cold. I wondered if that was him, holding my hand, reassuring me that everything is going to be ok.

And I know, everything is going to be ok. And everything is, for the most part, ok. Except for when it’s not. (I know, wiser words were never spoken – it’s a wonder Harvard or Yale hasn’t offered me an honorary PhD in life.)

There are some perks to being a widow – I have full control of the remote control (well, after the boys go to bed that is); nobody ever critiques the way dinner is presented anymore; we eat in the living room whenever we feel like it; I can read for hours if I want – no one complains he’s not getting enough attention; there’s less laundry; we spend way less money (that’s also thanks to the whole don’t leave your house thing we have going on right now); I can go to bed whenever I want (my husband was always big on us going to bed at the same time – funny (not like in a funny ha ha way, but funny in an ironic way), he used to be the one that wanted to stay up late while I preferred an earlier bed time and now I’m always up late watching television that doesn’t make me any smarter and living other people’s lives through social media; there’s no guilt for eating the last Twix; I no longer have to watch golf on television, which I guess is also due to circumstance at the moment, but also, I don’t really enjoy watching golf on television so I’ll keep it in the perk column; there’s less mess in the house (not much less because 2 boys and I kinda suck at cleaning) but slightly less; I have 2 bathroom sinks all to myself; Ash was a critical guy by nature, so not constantly being told how I could improve myself isn’t so bad. I know, these are all silly things but I’m a silly girl and you get what you get.

There is one major thing that I can take away from being a widow as being a pretty large, I don’t know that perk is the right word, but it’s something I have always lacked and something I’m gaining more and more of every single day. Courage. I’ve always been a bit of a coward. I mean, my dad was still ordering my food for me in restaurants when I was 18 years old, I made my roommate make any kind of important phone calls for me all through college in exchange for ironing her clothes and then, once I got married, my husband took over ordering my meals for me and all the important phone calls. I’m intimidated by people. I always have been. I’m more on the shy and introverted side and was always happy to stay on the sidelines. But once you become the only adult in your life (that’s not literal, obviously I have other adults in my life, but on the regular, it’s just me and 2 kids), you have to grow some balls, you have to take the field and you have to start making some fucking plays. You have to order your own food. You have to make important phone calls. You have to make huge, life changing decisions, all by yourself. These things have never been my strengths. But now, I don’t have any other choice. And you know what, it feels kind of good. Liberating, in a way. Given the option, clearly I would keep my husband and keep deferring to him but nobody gave me a fucking choice. So I have had to woman up and I won’t say I’m doing great at this whole courage thing (it’s still pretty new), but I’m not doing bad, either.

Some days, I still put off the important phone calls, I avoid answering the phone, I turn in to myself and avoid being brave. But that’s only some days. And there will always be times when I have to take that time, because I am not naturally courageous. But I’m learning and growing, I’m changing, for the better, I think, because I’m relying on me to get us through this life, and if I can’t rely on myself, who can I rely on?

 

Strength and the Lack Thereof

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I am strong. That is my daily mantra. I set the intention of having strength every day. And I’m going to brag a bit and say I do a pretty good job on most days.

Enter global pandemic. That strength I’ve been holding so tightly to has sailed away like a ship in the night. You see, in real life, we are constantly on the go between kids, friends, sports, school, eating someplace other than the kitchen, errands and other such things that make our lives an actual life. Put that life on hold, and us recently unfortunately widowed folks are left to actually have to deal with our feelings. So thanks for that, raw bat eater. I’ve got a couple of hand signals for you.

I selfishly took this past Saturday, and aside from working out, did not leave my couch. I let my children play outside, I gave in to too much screen time and too many video games. And I parked my ass on the couch and didn’t really move. Other than to blow my nose because I let myself basically cry all day long. It is not my proudest day in history, nor my strongest day in history. But maybe it was my most necessary day.

I recently complimented myself on not having a day where I laid around and drowned in self pity. I guess I planted the seed in the recesses of my mind. And that seed sprouted and turned into this past Saturday. I watched romantic comedy after romantic comedy, which was quite the idiotic move because do you know what life is not? If you said a romantic comedy, you would be exactly right. But it did unlock feelings that I guess I’ve been holding onto for far too long and I finally let them out.

The problem, you ask, with letting them out? Once they start, I’m not sure how to make them stop. There is so much shit, in the world, in my own personal life, that sucks right now. And if I’m completely honest, I’m having a hard time finding the bright spot. Yes, my children are a bright spot, we have our health and each other and all the other shit you’re supposed to say that you’re grateful for (and I am grateful for it) but I also have all of these other negative feelings and self doubt and pain that are overtaking everything good that I know I have.

And there’s really not anything to be done about it, which would drive Ash crazy. He was always a fixer, not great at the listening and just being there. If there was a problem, yo, he’d come up with several ways to solve it. There’s no distractions to push away the painful feelings. There are no friends to give hugs and love and feed me wine and tell me I’m pretty. (That’s a joke.) It’s just me. And the boys. And the dogs. Trying to pretend like we’re ok.

My poor kids, every night, something makes me cry, generally at the dinner table. My sweet Jack always asks if I’m alright and my sweet Colt always answers she’s just missing daddy. And that is true. I am missing him. But there’s so much more to it than that. So many things, that I, myself, do not understand and do not know how to navigate through.

So, for now, I guess I’ll just let the water works flow. Because what else are you supposed to do when your husband dies and then the world fucking stops?