Category: cancer

Abrasive

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Monday night I did not feel well. It was a normal enough evening. It was colder than a witch’s tit out. It was raining. It was a perfect evening for potato soup. We had some friends over for dinner. I had one glass of wine. Pretty normal. By the time I went to bed, I felt like shit. I lay there, unable to get comfortable, tossing and turning. My stomach literally felt like it was going to explode. I kept going between thoughts of “shit, my appendix is minutes from bursting” and “lord, please don’t let my children find me dead in the morning” and “holy fuck, how the hell am I going to get to the hospital because certainly if my insides are exploding, I shouldn’t drive, and my driver went and died on me and I don’t want to call 911 because what if I’m really fine and just have a bit of gas, that would be super embarrassing, and I don’t want to call my parents because they’re probably sleeping and they don’t generally sleep well so I definitely should not disturb them and I don’t want to call any of my neighbors for the same reason I don’t want to call 911” until I finally go to this thought – my husband felt like this, but far worse, every fucking day for years. And that one thought stopped me in my proverbial tracks.

I am the type of person that is generally pretty good about compartmentalizing. I can come off as abrasive and uncaring, I think. Which isn’t true. It’s just how I deal. I can remember being at the park with Jack when he was around 2 years old. This was before I’d really made any other mom friends, and Ash was working all the time, so it was just him and me, hanging out, parking it up, doing the mother/son thing. He was playing on the slide. I was sort of paying attention, sort of day dreaming about what I used to do for fun before watching 2 year olds climb up the ladder, slide down the slide, giggle, repeat. Again. And again. And again. You get the picture. Next thing I know, I see Jack tumble off the side of the slide about halfway down and land with a big thump in the dirt. There are other mothers and children around. I hear the gasps and the “oh no’s” and the “is he ok’s”. I calmly get up, walk over to him, help him up, look him over one good time and tell him “tough boys are tough.” (Now, before you get your panties in a wad, Jack came up with the saying tough boys are tough and used to say it all the time whenever he took a tumble or got a scratch or anything like that – I wasn’t just being a bitch. For the most part.). I also then heard more gasps but of a different nature this time. These were the “I can’t believe she just said that to her hurt child” gasps. Here’s the thing, the fall hurt, there’s no doubt about that. But I knew he was fine. I knew the bigger my reaction, the bigger his reaction. I also knew I was being hardcore judged for my seeming lack of empathy and hightailed it the hell out of dodge.

Exhibit B – Jack played on a travel baseball team when he was 9 (he was on a 12u team and my point to that is not to say how good he is, my point is that he’s young playing against much bigger and better players, especially pitchers). It’s the weekend before Ash passed away. I’m sure I’ve told this story, but my point is different this time so I’ll allow it. Jack is up to bat and takes a fast ball to the face. And he hits the deck. I mean, he falls out. And what do I do? Nothing. I stand at the fence and watch until finally the coach yells at me to come to Jack, he’s down and he’s bleeding. So I went to him. I didn’t panic. I didn’t cry. I didn’t coddle. Hell, I didn’t let him skip the next game. I mean, I sort of gave him a choice but he’s my kid and he chose to play. I grabbed his tooth out of the dirt, gave him so ice and returned him to the dugout to cheer on his team.

I’m not big on coddling, I don’t get sad because my children get older (that’s the whole point of life, if you’re not getting older, chances are you’re dead), it’s rare that you will see me cry in public and I will make more jokes about my husband being dead than is deemed proper (is it ever deemed proper??? Probably not. But I deem it proper and Ash knows who he married so I’m willing to bet he deems it proper as well). It’s who I am. I can lock things up in my brain, and I can throw away the key or I can only let them out on my terms.

So Monday night, while I’m lying in bed convinced I’m dying, I thought of my husband. I thought of all the pain he endured and I thought of all the living he did while he was in that pain. And I felt shame. Because I never fully grasped what he was going through. I never actually put myself in his shoes and imagined how he must feel; partly because I had no idea how much pain he was feeling, partly because I had my own shit I was going through and partly because I literally couldn’t. I let myself imagine it Monday night, mainly because I thought if I was feeling even a fraction of the pain he felt, how the fuck did he not only endure it, but keep living his life while he did it? And how selfish was I to keep pushing him to do things? To complain when he didn’t feel like doing things? To feel sorry for myself for what I was going through? I’m a fucking prick. And that’s when I lost control of my emotions, weeping uncontrollably while still trying to determine if my appendix was rupturing. (Side note – it wasn’t. I’m fine.)

But all of that has led to me to this – God made me abrasive for a reason. He made my brain work the way my brain works because I have to survive. If I were to constantly think about what Ash has been through, what my children have been through, what our family has had to endure, there is no way in hell I could function. It is just too hard to bear. When I let my mind really go there, I become paralyzed with grief and despair and loneliness and unending sadness and shame and guilt and so many other feelings that are difficult to function with. So God gave me the tools to lock it up. I can let it out when I need a release, when I need to remember, when I need to feel that pain. But I can also put it back in the recesses of my mind and go on being a mother, daughter, sister, friend and pain in the ass. I can be me. Sarcastic, witty, abrasive, me.

Purgatory

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Disclaimer: There is much cursing, sadness and self pity happening up in here…

Am I in hell? Purgatory? Some days it certainly feels that way. I’ve heard you must pay for your sins here on Earth before you can make it to the pearly gates. And I’ve got to say, I’m sick of paying. I’ve sinned. Lord knows I have. But when will the debt be settled? How much longer will this Groundhog Day continue? I’m guessing for the rest of my life. I understand that there are different chapters in life, and to get to it, you must go through it. But I’m fucking sick of going through it.

I’m being a bit dramatic, I know. But 2 years ago, our lives changed forever. August, 2 years ago Ash really started feeling like shit. Unfortunately, we equated it to his liver disease and didn’t really think much of it. I’m not sure it would have a made a difference had we sought help sooner as he was diagnosed with rare, no cure cancer, but that’s one thing we will never know. (Although, let’s be fair, the outcome would have been the same.) For some reason, though, this month 2 years ago has really been weighing on my mind. We were ignorantly happy, working, playing, enjoying ourselves and then BAM, life was never the same again. Hell, Ash was so used to feeling like shit, I/we didn’t even notice how bad it had gotten, how much he had thrown up, how much weight he had actually lost. And all these things are spinning through my had like a hamster on a wheel, over and over and over again.

We did our best while he was still around but everything changed. My role as wife became something completely different. Nurse, caretaker, fetcher, pharmacist, waitress, masseuse, (although, let’s be real, some of these things I was doing before devastating cancer news) we were still friends, we still made each other laugh but everything wife was no longer what one thinks of as a typical wife. He fought for 13 long (and very short) months. For a while, on the chemo, he did great. And then it stopped working and nothing else worked again. And that poor man suffered. He suffered so much. Yet, if you knew him, he never let on to how bad he was truly feeling. Which, also if you knew Ash, was very unlike him. Men get fussy when they’re sick. They like to be babied. Unless they are dying. He was tough as nails. He fought so hard. He was my hero.

And now, I just can’t stop thinking about the hell he went through and the hell we are still going through. Which, again, is dramatic. I am aware that we are extremely fortunate and have so much to be grateful for, and we are, but I am also aware that there are a few things for which we are not so grateful. Losing Ash – husband, father, friend – we’re not feeling very appreciative of that. Almost immediately following that, as if our lives and routine weren’t fucked up enough, enter global pandemic – not really appreciating that one either. Remember the movie Groundhog Day? That is what this new normal feels like. I am trying to keep alive and entertain 2 children, who I fear might not actually like me anymore (they love me, but like, that’s a bit questionable these days). Possibly because our “pandemic” started 2 years ago. And we’ve all changed. So, so much. Because of course we have. You can’t lose the. nucleus of the family and come out unscathed. We have bad attitudes, we are constantly irritated with each other, we are short on patience, we are tired no matter how much sleep we get. And we are so sick of it. We want out. We want life to go on. We want our new normal to be, well, more normal.

And I understand, we all feel this way. Shit is crazy for everyone right now. But this is my pity party, and I’ll cry, bitch, moan and complain if I want to. It doesn’t matter how much we do, how many loved ones, friends, family we surround ourselves with, there is still this bottomless pit of loneliness deep inside that I am desperate to fill. And sometimes, it does fill like I’ve done a good job of filling it. Until it doesn’t again. That bone deep sadness and loneliness always comes back. And I wonder – is that just how it’s going to be for the rest of my life? Will there always be a void? Will my heart always feel just a little bit broken? As mama always says, time will tell. I hate to wish my life away, but I wouldn’t mind fast forwarding just a little bit to get through this shit show we’re in right now.

We’re really ok. We have so much. We love so much. We are so loved. But, we’re also a little bit not that ok.

 

Midnight Melancholy

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Disclaimer: This post is depressing as hell. Ye be warned.

How is this my life? Am I allowed to be depressed? There are some times when I feel fine, good even. But then there are other times where everything feels absolutely hopeless. Like now, for instance, at 1:00 in the morning. When I should be sleeping, but I’m not. Because I feel like shit. Not physically, physically I’m fine. Technically, that’s not true either because I somehow sprained my wrist today playing baseball with my 10 year old because that’s just what happens when you reach a certain age. You try to do things with your kid and you end up hurt. And it hurts like hell. But I’d gladly feel wrist pain every day for the rest of my life if I didn’t have to feel this emotional pain that still tries to consume me.

Night time is when it always gets the best of me. Whenever everything gets quiet. When everything goes dark. When it’s just me and the sound of the stupid clock ticking in the background. When I go into the bathroom to get 1/2 a Xanax to help me shut my brain off, but open the cabinet and see my dead husband’s anti-nausea medication staring me in the face. Because my husband had anti-nausea medication for his terminal cancer that ended his life.

I suffered from postpartum depression for nearly 2 years after having Jack. At the time, I had no idea that’s what the problem was. I just knew that I felt emotionally dead inside. I’m a cryer. I’m sensitive. These are facts about me that have been true since the day I was born. But for 2 years after the birth of my first son. I didn’t cry. I didn’t feel. I was nothing. I felt like no one. I lost myself. And I had no idea.

Now, I’m well aware of how I’m feeling and that feeling is fucking broken. And guilty. And alone. Growing up, and probably well into my 20s, I used to always think how lucky I was because nothing tragic, truly tragic, had ever happened in my life. It’s like I was tempting fate. Like I decided I was untouchable from tragedy. It happened to other people. But not to me.

And then I got married. I had a child. I suffered from an unknown depression that left me empty.  I fought with my husband nonstop. I wished he would go away. I threatened to leave him. And now he’s gone. And I can’t help but feel somewhat responsible. Yes, in my rational head, I know that’s not how these things work, but we can’t always control where our thoughts lead us. How irrational our thoughts can become.

I’m having a hard time enjoying my life. Certainly, I live and breath, my heart beats for my children. They are my absolute everything. But I’m not the same. We’re not the same. Life is not the same. Which is a stupid thing to write because of course we’re not the same. How could we be? But, fuck, do I miss my husband? His friendship. His love. His advice. His support. His touch. His kiss. His humor. His passion. His ugly ass feet. His beautifully perfect eyelashes. His nonstop chatter. His awful driving. His intolerably lengthy shopping habits. His appetite. His passion. His adventure. His dreams. His irresponsibility. Just him. All of him. The perfectly imperfect man, husband, father and friend that he was.

This isn’t my finest hour. When is 1:30 am anybody’s finest hour? I just wonder how it all came to be, why it all came to be? How is this my life? It’s certainly not how I pictured it to be as a young girl who’s main dream in life was to get married and to have children. I guess I should have specified that I would prefer my husband also stay alive to help raise said children. Rookie mistake. In reality, Ash did make my dreams come true. He made me a wife and he made me a mother. Unfortunately, he also made me a widow. What a dick. That wasn’t part of the plan. We had a plan. Create successful business, raise successful children, pray said children want to take over said business, retire, move to The Villages and spend the rest of our days soaking up the sun, playing golf and making out like teenagers. But, alas, fate had other plans.

Don’t mock fate. Don’t take for granted what you have. Don’t settle for less than what you deserve. Soak it all in. Please. For all us widows wondering why the fuck, what the fuck and how the fuck?

Nothing and Everything

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My husband is dead. It’s been almost 6 months. And he’s still dead. I walked into our, well, my, technically, bedroom tonight and I could smell him. And I sobbed. He didn’t even really have a particular smell. He didn’t wear cologne even though I kept buying it for him. He used whatever soap I purchased, so I guess we smelled pretty similar. His shampoo wasn’t super aromatic. But I swear I could smell him. So maybe he did have a scent.

I miss him. And yet, it’s almost as if he were never here. I often wonder how in the world did it all happen. Why did we meet? How did we fall in love? How did we come to marry and have children? And how on Earth is he gone? At 37 years old. I’m 13 days older than Ash and he always joked I would die first, naturally, because I’m so much older. But that didn’t happen.

He started getting sick in 2014. I also happened to get pregnant at the very end of 2013 so, at first, I felt like he was stealing my thunder a little bit, what with all the throwing up and not getting out of bed. That’s what I was supposed to be doing. He had countless doctor appointments and multiple hospital stays before he finally ended up with a diagnosis. Primary Sclerosing Cholangitis. It’s an auto-immune disease that affects the liver and bile ducts. I’m sure you could have guessed that if you have been reading my writings for a while. There is no cure. He may need a liver transplant 10-15 years down the road. Ash’s doctor was world famous. One of the best in his field. We were scared back then but he assured us, most people that have PCS die with it and not from it. Most people.

Ash and I changed our lives. Our marriage had been more than a little shaky for a while. At times, I did not deserve him. At times, he did not deserve me. But once he was diagnosed, back in 2014, our perspectives changed quite a bit. We learned to accept each other. We worked at it every day. And it worked. We changed. Ash had to quit drinking, you know, because of the whole liver disease thing. He started a clinical trial, we had to travel a couple hours north once a month to his doctor to check in and they were some of the most fun days in our relationship. We learned to communicate with each other again. We fell in love all over again. I guess, in a way. Life changed, for the better, if you can believe it.

In April, 2018, we were back at Ash’s liver doctor, just for a routine check up. And the words that came out of that doctor’s mouth was some of the best news we’d ever gotten in our lives. He said “I don’t know what you’re doing, but keep it up. Your numbers are incredible. We don’t see this with this particular disease much.” In September, 2018, he was diagnosed with Stage IV Terminal Cholangiocarcinoma. Bile Duct Cancer. Terminal. That’s how fast it happened. He went from what we liked to joke as a “medical marvel like Ross Gellar” to a dying man. How does that happen? Why does that happen?

I just miss him. I miss kicking his ass at Mario Cart. I miss all our date nights. I miss holding his hand. I miss just driving around doing nothing with him. I miss the way he could make me laugh. I miss his amazing smile. I miss his positive attitude. I miss how he always knew when I was about to start my monthly business based on my attitude. I miss hearing his voice. Jack has Ash’s old cell phone and the voicemail on it is still Ash’s voice. I call it, at least a few times a week, just to hear that “Hey, it’s Ash’s voicemail. Leave a message.” Simple. To the point. Just like Ash wasn’t. Ha! (It’s funny because it’s true.) Either way, I miss him. Hell, I miss the shit that I hated and thought I’d never miss. But I do. Grief is annoying like that. It reminds you that even the bad shit wasn’t really that bad. In my case anyway.

The kids are so incredible. They are so resilient. So in the moment most of the time. Sure, they have their breakdowns. But they are less frequent. I’m so envious of their strength. They are growing and learning and they are just amazing.

I don’t know the point to any of this, other than I went in my room, could smell my husband, sobbed and felt the need to write. So I did. And it’s helped in the way that only it can. My own personal therapy. Remembering him is a gift, one that I hope to only love one day.

Broken

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How do you not hate everything? It’s nearly impossible. You have good days. You have shit days. You have mediocre days. But even on the good days, there is this underlying pain that trumps even the best times.

We put on a brave face most of the time. But if I can be real for a minute, that’s all it really is, just a brave face. Because inside we are so fucking fragile. We are broken. We are lost. And I don’t know how we come back from that.

We trudge along. We do the things we are supposed to. We laugh at stupid jokes. We talk to our friends. We go about our daily lives. But none of it is the same. Because we are fucking broken.

We are vulnerable. We are scared. We are bone deep sad. We are so sad that it physically hurts. We have this newfound realization that everything, and I do mean everything, fucking ends. The good things end. The bad things end. Things you wish would last forever end. Things you never wanted to begin with end. It all just fucking ends. Whether you are ready for it or not, it all ends.

And it fucking hurts. I hurt all the damn time. And there is absolutely nothing I can do about it. I’ve tried to fill the void with things that are good for me. I’ve tried to fill the void with things that are bad for me. I’ve tried distraction. I’ve tried copious amounts of wine. None of it fucking works. It may seem like it for a time, but in the end, I still fucking hurt.

Was my relationship perfect? Not even close. But it was mine. I married a man. I started a family with a man. And now, he’s gone. And we are fucking broken.

I grilled steaks tonight. I didn’t burn my house down. I didn’t burn the steaks. They were even quite tasty – according to Colt, the best he’s ever had, my sweet, sweet boy. And Jack? Jack could barely eat it. He said it didn’t feel right eating steak without daddy. Because we are fucking broken.

To my friends, I’m sorry. I am a terrible friend right now. I am selfish. I am angry. I am tired. I am alone. And I can’t be the friend you deserve. To my family, I am sorry. I rely on you for everything. I need you constantly. I thought I was strong, but I’m not. I’m just fucking broken.

I want to numb the pain. I want to make it all go away. I want to forget. And I never want to forget a thing.

I sometimes ask myself, if I had it to do all over again, knowing the end result, would I do it? Would I go on that date? Would I meet that man that would change my life forever, in so many ways? It’s a stupid path to go down, because, of course, we can’t change a damn thing. But it doesn’t stop me from wondering. Of course, the immediate response is YES! I would do it all over again. The days when I’m really feeling it, this unrelenting agony, this gut-wrenching pain, the answer is no, I would skip all this heartache, all this pain, even though it would mean I wouldn’t have these exact children, because then they wouldn’t be broken either. But the real answer doesn’t matter. I don’t even know that there is a real answer because you can’t change what has already happened. And honestly, I wouldn’t want to. I mean, if I could go back and change things, I would change Ash’s shit liver, not us being together. Because, no matter how short, we were meant to be together for that period of time. We were meant to have 2 beautiful boys. And I guess we were also meant to lose each other November 12, 2019. And I guess that means Jack, Colt and I are meant to be a little bit broken, for the rest of our lives.

Why?

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The dreaded question. The one that has no answer. But I can’t help but wonder, why us? Why my kids? Why don’t they get to have their father? What did they do to deserve this? How were they chosen? Is it something that God chooses? Is it an eenie meenie miney moe kind of thing? Is our fate already decided before we’re even born? Don’t get me wrong, this is not something I would wish on anyone. But I especially don’t wish it on my children. Do they ever wonder why my dad? Of course they do, but they’re kids, and they go with the flow. They feel it and then they move on. I envy them for that. I feel it nonstop. All the time. So many memories. So many good times. So many terrible times. But it all made us who we were, who we are. And I just can’t help but question why. Certainly Jack and Colt don’t deserve this. They are young and wild and innocent and beautiful and intelligent and weird and perfect and imperfect. Why don’t they get a life with the man that helped create them? The man I chose. The man that chose me. Why did we get so unlucky? Fate? Luck or lack there of? God’s plan? Well, God, guess what? Your plan really sucks for us. We are ok because we are strong, but we are not ok because a very large piece of us is missing.

Tonight was not a great night in the Jones household. That’s actually a lie. It was great in a beautiful and sorrowful way. We were sitting at dinner, just chatting and I looked over at Colt, looking so much like his daddy, acting even more so like him and I asked his favorite memory with daddy. This lead to a mad dash from the table to my (my, mine alone, just mine) bedroom to grab our “Daddy Memory Box” filled with weird and random shit chosen by the boys. Colt, in his 5 year old excitement, brings the box to the table and grabs Ash’s wedding band (one of those rubber/silicone rings you order on Amazon for $8) and declares that his favorite memory of daddy. Ok. What about anything you did with daddy, I ask him. His reply: legos and golf were my favorite things to do with daddy. Mine too, buddy. Well, not Legos, they’re not my favorite but golf, that was definitely a favorite.

Jack then decided to take his mad dash from the kitchen table to gather all the memory/photo books we’ve created over the years. We paused our eating and just flipped through them. And we cried. We cried because we made so many great memories together. We had so much fun together. We also created some pretty awful memories, but the beautiful thing about life, and death, is that once someone is gone, even the bad becomes the good. Because it’s something to hold onto. It’s something that you learned from, something that seemed important at the time, but in reality, didn’t matter one damn bit. It’s not that someone becomes perfect once they are gone, it’s that you realize how much you loved the perfect and the imperfect. Because it helped shape who you were, who you are and who you will be. You can look back and laugh at what once caused you so much anguish. You can find the hilarity in the awful, the beauty in the pain, and the love in the hate.

Ash and I were passionate. We fought with passion and we made up with passion. And what I wouldn’t give for one more fight and one more makeup. I can remember the last time we lay together as husband and wife (you know, in the biblical sense). It was January, 2019. We were in a Residence Inn in the Brier Creek area of Raleigh. It was the day before chemo. We didn’t know then that it would be the last time, at least not consciously, maybe subconsciously. It wasn’t our best effort, either, for obvious reasons. It was a little clumsy, we both cried the entire time and it was short lived. It wasn’t passionate but it was full of love, full of trepidation, full of fear and full of sorrow.

I’ve dreamt of Ash twice in the last week. In the first dream, we were riding in the back of a pick up truck. Our children were with us (so unsafe). My mother was driving (she would never allow the children to be in the back of a pickup truck) and my father was riding shotgun. Ash was upset because he had just learned I’d made an offer on a lot without consulting with him (um, bullshit babe, I asked you nonstop for guidance) while my mom was trying to tell him how nice Mother’s Vineyard in Manteo is. The next one, I walked into some kind of cafeteria. He was sitting at a table with a bunch of unfamiliar faces. We locked eyes as soon as I walked in, he got up and started walking towards me as I was walking towards him, never breaking eye contact. And then I woke up. That one hurt.

So, again, why? Why my children? Why us? And why, following all of that, must we be stuck at hour homes with no outside contact? How are we supposed to handle that? I guess with the same strength and resilience we’ve handled everything else.

My parting words to you this evening are to hug your husband/wife tight. I know he/she is probably driving you crazy (especially since you’re stuck with only each other), but imagine if you didn’t have him/her at all. Would the bad times also become the good times? I’d bet my life that they would. Fight passionately and make up with that same passion. It’s all cliche but it’s all true.

End Game

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Ash and I were (technically I guess I still am) huge Marvel movie fans. They have everything a great movie needs – plenty of action, a dose of humor and even some romance thrown in the mix. We saw Avengers: End Game one Tuesday night at a large AMC at the Streets of Southpoint in Durham, NC. It was one of those theaters where you could order beer or nachos or other items that you would never have considered ordering at a movie theater (we never did venture past popcorn and a coke). The chairs were recliners (that possibly may have had a heated seat feature, I can’t quite remember), there were tables and fancy cupholders and you had assigned seats, which never failed, we always seemed to mess up somehow. It was a pre-chemo night. See, Durham is a good 4 hour drive from us, appointments and chemo always started first thing in the morning so Ash and I would go up the day before, stay in a hotel and always tried to make a date out of it (we were always very good at dating), even when he felt his worst, he always wanted to keep me happy, entertained and feeling his love.

Last night, my youngest, Mr. Tolt, spent the night with my parents. (I promise this is probably leading somewhere relevant, but maybe not. It’s hard to say where my brain might take us.) Jack and I had an at home date night, just the 2 of us. Well, the 2 dogs were here as well but they don’t really count since they don’t talk and one of them constantly ignores all of us and the other is constantly in our faces. At first he ignored me (kind of like our old brown girl), as every 10 year old boy likes to do to his mother. He engrossed himself in several Star Wars Battlefront, well, battles, for lack of a better term, until I lured him away with a delicious dinner of frozen cheese pizza (don’t worry, we didn’t eat it frozen, I’m not that bad of a mother) and Caesar salad.

After eating, he finally decided he would grace me with his presence and he wanted to watch a movie. His choice was End Game. I convinced him he needed to see Captain Marvel first, which I’ve been attempting to get him to watch with me for months, to no avail (apparently when you’re 10, and male, girl superheroes aren’t that cool, at least for him anyway – I don’t want to blanket all 10 year old boys in that category). I told him she could kick his ass and would be worth watching, I promise. So we watched it last night and he loved it, as I knew he would because Mama generally knows best. We then had a slumber party in my bed, which is a rare thing that both my boys seem to think is the best treat in the world.

We slept in this morning until almost 9 am (one of my favorite treats!). We’re actually still in our jammies now at 12:20 pm EST (don’t judge us, we’ve nowhere to go and not shit to do). As soon as we woke up, brushed our teeth and got coffee (well, I got coffee. He didn’t. Because 10 year old.) Jack turned on Disney+ and loaded Avengers: End Game. I was excited. He was excited. The movie is great, albeit a tad on the lengthy side (that’s why it worked out so well that Colt wasn’t here.) I saw it, with Ash, not too long ago (see above), and I had no idea the affect it would have on me today, watching it with our oldest son.

We’ve been so wrapped up in the Coronavirus pandemic, it’s been easy to forget what else has been happening in our world, what we’ve lost, how we’ve navigated the last 4+ months, even what we’ve gained and how we’ve grown and changed.

This morning, watching End Game, made me feel our loss again. I ugly cried for the first time in a while. It was hard to watch the end. I found myself comparing my loss to Pepper’s. She looked so beautiful and full of grace for Ironman/Tony Stark’s funeral whereas I looked drunk and loopy at Ash’s. (Also, I know it’s all fake and a movie, I’m not that crazy, yet, but it invoked feelings and when I feel it, I do it, you know.) The part where she told Tony to rest now, it would be ok, they would be ok, I never did that for Ash. Not while he was conscious anyway. On the night I ultimately led him to his death, I said it, but in true Kellie fashion, I made it a joke. I laughed. I asked if he could see the light and if so, to go on into it. I guess I told him we would be ok. I can’t quite recall. But I wasn’t serious. I never take much seriously and in this instance, I wish I would have. I had been up all night, slowly easing his pain, slowly taking his life (because I was instructed to do so – just want to make that clear – I did not murder my husband – I eased his suffering upon strict orders to do so). At 5:30 in the morning, I decided my mom and I needed coffee. I left the room and Ash left me. I didn’t say goodbye. I didn’t tell him I loved him. I didn’t tell him we would be ok. Nothing. I left the room. And he left us. End Game.

Today, I watched a movie with my son. Today, after watching that movie, I am not ok. I am filled with regret – regret for not being a better wife, regret for the way I left things during Ash’s final hours, regret for making everything a joke. He deserved better. He deserved my best. And I did not give it him. That said, he loved me anyway. I just wish I would have said a proper goodbye. I wish I would have thanked him for choosing to spend his life with me. I wish I would have said I love you just one more time instead of hey baby, see the light? Why don’t you go on into it. I wish I would have embraced him one last time, held his hand all through the night. But I didn’t it. And I can’t change that. I can’t get that back. End Game.